What are the treatments for the disease?

Treatment cannot cure these diseases at this point in time. Corticosteroid medications may slow the progression in some cases. Special braces for the arms or legs may allow a person to continue to be active for longer. Wheelchairs are often required later in the disease course. Surgery may help in some cases if the limbs become deformed. Special treatments may be required to support the heart and breath.

What are the side effects of the treatments?

Corticosteroid medications have many side effects, including bone loss, weight gain, and depression. Surgery may be unsuccessful or may cause bleeding or infection.

What happens after treatment for the disease?

These diseases virtually all get worse over time and current treatment does little to change this fact.

How is the disease monitored?

Symptoms are monitored, as is the person's ability to carry out daily activities, such as walking.